Decode, Detect, Necklace: National Campaign Puts Spotlight on sickle cell disease

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Decode, Detect, Necklace: National Campaign Puts Spotlight on sickle cell disease


To eliminate India’s ambitious drive sickle cell disease By 2047 This month is gaining momentum with the launch of a national media campaign “India’s fight against sickle cell: from awareness to action.”

Under the leadership of Hindustantimes.com, Healthshots, Novo Nordisk & NASCO, the campaign runs awareness and action on sickle cell disease.

Under the leadership of the campaign Hindustantimes.com And Healthshots In partnership with Novo nordisk And ,,

The campaign begins in June to mark the importance of World Sickle Cell Day, on June 19 globally. To honor this milestone and deepen the national conversation, the initiative will conclude at a high-level conclusion on June 30, 2025 in Lalit, New Delhi.

One of India’s less widely recognized public health priorities

sickle cell disease India’s most important public health is one of the burdens. As Ministry of Health and Family WelfareMore than 20 million people A sickle cell takes genes with an estimate in India 1.5 lakh children The disease was born annually.

Source: https://pmc.ncbi.nlm.ni.gov/articles/pmc8715680/

Sickle cell disease (SCD) is an inherited blood condition that changes the shape of red blood cells, which can sometimes affect how oxygen flows through the body. Although it can give rise to an episode of discomfort and some health challenges over time, many people with SCDs live full and active life, especially with early diagnosis, regular care and correct support systems. In India, this situation is found more in specific geographical belts, including Gujarat, Maharashtra, Rajasthan, Madhya Pradesh, Jharkhand, Chhattisgarh, West Bengal, Odisha, Tamil Nadu, Telangana, Andhra Pradesh, Karnataka, Sandha, Utar, Urtar, Hema, Hema, Hema, Hesh, Ometer, Karnak, Karnataka, Karnataka, Karnataka, Karnataka,

Increasing access to screening and care in these areas has been helping to bridge the longer intervals and better results are being introduced for individuals and families.

Source: https://nirrch.res.in/Health-technology-asessment-resource-resource- hub-copy-2-2-2-2/source=chatgpt.com

According to data Indian council of medical research (icmr) And National Health Mission (NHM), Carrier Tribal districts are 10% to 40%with Dissemination of disease in newborns at 1-2% In high-bound areas.
Source: NHM – National Sickle Cell Anemia Elimination Mission Guidelines (2023)

Government of India launched National Sickle Cell Anemia Eradication Mission (NSCAEM) In July 2023Targeting 7 crore screening by 2027 And target for Eradication of disease by 2047According to India’s 100 years of freedom goals.

Pouring the voice of the patient

A main goal of “India’s Fights Against aqual Sale: From Awareness to Action” is to keep the patient’s voices in the center and reduce social stigma through story and journalism. This campaign will bring out the living experiences of the SCD -patient, families, carers and people affected by frontline health workers – highlighting both challenges and hope that can provide initial diagnosis and proper care.

During the campaign, the audience-which include healthcare professionals, public health officials, policy makers, researchers, civil society organizations, entrepreneurs, start-ups in health innovation, and comprehensive public, who will hear from individuals in various fields of India, who have placed the realities of this Lefelong condition.

“India should see sickle cell disease not as a separate tribal issue, but as a comprehensive national priority. Given the limited awareness of SCD between patients and public, there are many challenges, including lack of trained health professionals in rural areas and insufficient coordination among various stakeholders. For, “Prime Minister’s vision.” Gautam Dongre – National Secretary, National Alliance of Sickle Cell Organization (NASCO).

Driving cross-sector cooperation

Novo nordisk indiaThe campaign is supporting the government’s efforts to promote the government’s national mission by promoting active association between stakeholders including sponsors, central and state governments, public officials and policy makers, government medical institutions, patients and NGOs, start-ups and entrepreneurs and comprehensive cross-sector cooperation.

“In India, 1.4 million adults and children live with sickle cell disease. Among them, tribal communities are most affected due to poor health conditions, sickness and greater burden of mortality and limited access to health services.

SCD will require a continuous partnership between the government, healthcare, civil society and industry to eliminate SCD. As the first step, the Novo Nordisk Education Foundation, is proud of supporting this campaign, which brings national attention to SCD and helps to pursue health equity, “ Said Vikrant Shrotriya, Managing Director, Novo Nordisk India,

About the campaign

In June, “India’s fight against sickle cell: from awareness to action” Will distribute:

  • Editorial article Paid beyond HT and healthshots
  • Short video lecturer And Patient’s admirement
  • Specialist interview And Doctor panel
  • Social-first material With the aim of increasing public awareness and community participation

World SCD Day event But June 21, 2025But Lalit, New DelhiWill bring together Policy leader, healthcare professional, patient and public health advocate To chart the front path.

As in December 2008, the United Nations first tries to accelerate national progress, with the first global adherence to about 16 years since the first recognized World Sickle Cell Day. Under the National Sickle Cell Anemia Elimination Mission of India, the country has set a target of screening about 7 crore persons as a milestone to wide eradication targets for 2047 by 2026 by 2026. To date, more than 42 million individuals have already been screening, underlining the pace of this public health effort.

With an integrated national effort – and the voices of a strong patient leads the conversation – the route to defeat SCD in India is more clear than ever.

Sources say

1. National sickle cell anemia eradication mission guidelines
Published by: Ministry of Health and Family Welfare (MOHFW), Government of India
Reach through: National health mission portal

2. The resolution of the United Nations General Assembly recognizes World Sickle Cell Day
document title: A/Race/63/237: World Sickle Cell Day recognition
Adopted: December 22, 2008
Add: https://undocs.org/a/res/res/res/rs/63/237

3. Press Information Bureau – Inauguration of India’s National Sickle Cell Anemia Mission
Date: July 2023
Summary: Official announcement of mission by Honorable PM Shri Narendra Modi in Shahdol, Madhya Pradesh
Add: https://pib.gov.in/pressreleasepage.aspx?prid=1938645

4. Press Information Bureau – Screening progress update
Date: March 2026
Summary: More than 4.2 crore people were examined under the mission
Add: https://pib.gov.in/pressreleasepage.aspx?prid=2006687

5. Indian Council of Medical Research (ICMR) – Annual Report on Sickle Cell Burden
Agency: ICMR
Summary: Area-wise circulation data, screening challenges and clinical research include
Reach through: https://www.icmr.gov.in
(See the relevant year-specific annual report on Tribal Health or Hemoglobinopathies)

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This is a disease awareness article by Novo Nordisk India Private Limited. This does not replace medical advice. For more information, please reach your medical registered medical practitioner,

Pay attention to the reader: This article has been created by the brand by the HT brand studio and does not have the journalism/editorial participation of Hindustan Times. Information does not constitute medical/health advice. Readers are advised to consult a registered medical businessman.


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